On July
21st, the U.S. HIT Standards Committee’s
Privacy and Security Workgroup identified consent management
as “the
widest, and perhaps most urgent, gap” in interoperability
standards, recognizing consumers are becoming more involved
in defining how their information is shared.
The
HHS Office for Civil Rights also recognizes the importance
of consumer choice:
“Individuals should
be provided a reasonable opportunity and capability to
make informed
decisions about the collection,
use, and disclosure of their individually identifiable health
information.”
Individual
Choice Principle, Office for Civil Rights’ Nationwide
Privacy & Security Framework
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