Resources

F o rC o n s u m e r s

Title Descritpion
Protecting the Privacy of Your Personal Health Information A short flash presentation for consumers concerned about privacy in the context of electronic health records
Health Information Privacy Tips A list of common privacy concerns and ways to be empowered with privacy choices

S u r v e y s a n d R e p o r t s

Title Description
Data Hemorrhages in the Health-Care Sector An examination of the types, sources and consequences of data hemorrhages in the US healthcare system. M. Eric Johnson, Center for Digital Strategies, Tuck School of Business, Dartmouth College, 2009.
2008 HIMSS Analytics Report: Security of Patient Data April 2008 report commissioned by Kroll Fraud Solutions
Electronic Health Information and Privacy Survey: What Canadians Think - 2007 Public opinion survey co-sponsored by Canada Health Infoway, Health Canada and the Office of the Privacy Commissioner of Canada; prepared by Ekos Research Associates.

W h i t e P a p e r s

Date Title
March 2009 Implementing Consumer Privacy Preferences in Health Information Exchange (HIE) using Service-oriented Architecture (SOA)
October 2006 (updated Feb 2007) Consent Aggregation: Beyond Basic “Opt-in” or “Opt-out”
(Managing consents in one, or across multiple applications)

 

P o d c a s t s , W e b i n a r s, V i d e o C l i p s, e t c.

Date Title
March 2009 Data Privacy Day 2009: A Retrospective
February 2009 Invasive information, Part 2 (4:09) Campbell Brown talks with senior medical correspondent Elizabeth Cohen about online accessibility of health records
January 2009 Podcast: Dr. William Yasnoff on eHealth and Compliance in Healthcare IT Infrastructure

 

I n d u s t r y L i n k s

American Health Information Management Association (AHIMA)  
Canada Health Infoway  
Healthcare & Information Management Systems Society (HIMSS)  
Healthcare Information Technology Standards Panel (HITSP)  
Health Information Security and Privacy Collaboration (HISPC) (RTI)  
Health Level 7 (HL7)  
Infoway Standards Collaborative  
Integrating the Healthcare Enterprise (IHE)  
NYMITY  
Organization for the Advancement of Structured Information Standards (OASIS)